WebJul 27, 2024 · Charlene Son Rigby becomes CEO of RARE-X July 27, 2024 RARE-X, the collaborative platform for global data sharing and analysis to accelerate treatment for … WebJul 12, 2024 · Charlene Son Rigby, the CEO of Rare-X, said she can relate to feeling invisible. Her 8-year-old daughter, Juno, has a rare disorder associated with mutations in the STXBP1 gene and she recalls the feeling of being alone when she first heard the diagnosis.
RARE-X Appoints Charlene Son Rigby as Chief Executive Officer
WebRARE-Xtra Podcast ©2024-Cheryl Schwartz, Charlene Son Rigby, Daniel Levine Page 9 of 9 important topic. I think of course, a big part of the challenge of diagnosing a rare disease is that many healthcare providers don't actually have firsthand experience with these diseases, because they're just so uncommon. So kind of like the WebApr 12, 2024 · The integration of these essential services will provide both newly diagnosed patients and veteran members of the rare disease community with essential tools and resources to take an active role in changing what it means to live with a rare disease. With Hope, Charlene Son Rigby CEO, Global Genes jcms knights logo
RARE-X Definition Series: Real World Evidence & Real World Data
WebPodcasts from women leaders in healthcare and medicine. Hear about the amazing career paths, contributions, accomplishments, and lessons learned in the world of healthcare. — HIT Like a Girl Pod We celebrate, listen to, and learn from women leaders. LISTEN ON: Apple Podcasts Spotify Health Podcast Network Looking for a past guest or company? WebApr 4, 2024 · Momentum Health Strategies. Jan 2013 - Present10 years 4 months. Alexandria, Virginia. Momentum Health Strategies provides … WebFeb 27, 2024 · CEO Charlene Son Rigby has spent her career building organizations at the intersection of data, technology, and life sciences and continues to create advocacy … jcms landscaping